BOSTON (WWLP) – Governor Maura Healey signed an Executive Order on Monday establishing a statewide strategy to support adults with profound autism, focusing on improving coordination across state agencies and advancing outcomes for families in Massachusetts.
The order specifically targets adults over age 22 who are diagnosed with autism spectrum disorder and require 24-hour assistance. These individuals often face significant intellectual disabilities and have limited or no language skills. State officials described this group as a highly vulnerable and growing population that requires specialized state resources.
The new advisory council will be led by the Executive Office of Health and Human Services. Membership includes designees from the Executive Office of Housing and Livable Communities, the Executive Office of Administration and Finance, the Department of Developmental Services and the Department of Mental Health. Other participants include the Medicaid director and the chairs of the Joint Committee on Children, Families and Persons with Disabilities.
In addition to state agency leaders, the council will include up to 10 members appointed by the governor. These members will represent families, clinicians, providers and advocates who possess expertise in supporting adults with profound autism. Governor Healey said she intends to select individuals who bring lived experience and deep expertise to the group.
“Massachusetts is committed to care and support for all,” said Governor Healey. “This executive order will strengthen coordination across agencies and help ensure that adults with profound autism and their families receive the support they need. I look forward to appointing individuals representing families, providers, clinicians and advocates who bring deep expertise and lived experience to this work.”
Lieutenant Governor Kim Driscoll noted that the policy initiative is intended to build upon the state’s existing infrastructure for disability services. Driscoll emphasized that the primary goal is to ensure state systems are better coordinated to meet the specific needs of this population.
“Massachusetts has long been a national leader in health care and disability services,” Driscoll said. “Today’s executive order builds on that legacy by focusing attention and resources on adults with profound autism and ensuring that our systems are better coordinated to meet their needs.”
The advisory council is tasked with several primary objectives, including reporting on the prevalence of adults with profound autism in Massachusetts. Members will also work to identify opportunities for more stable housing, health care and community-based services. The council will further focus on promoting person-centered approaches and encouraging innovative residential living models that support safety and stability.
The initiative also addresses the workforce necessary to support this population. The council will develop recommendations to support a sustainable and well-trained workforce that is responsive to the high level of care required. All future policy and budget planning recommendations must remain consistent with the state’s long-term fiscal responsibility.