Laura Unger’s “As some people push to make profound autism its own diagnosis, this family is raising twins with it” (Feb. 15) raises critical issues. The autism diagnosis is often described as a spectrum.

That has expanded awareness, but it has also masked significant profound differences in support needs among people with the same diagnosis. It is time to formally recognize “profound autism” as its own diagnostic category.

Children and adults with profound autism often cannot speak, may not understand danger and need constant supervision every hour of every day. Many have intellectual disabilities, as well as serious medical or behavioral challenges. Their parents and caregivers are not just offering support — They are providing lifelong, around-the-clock care.

When all forms of autism are grouped under one broad label, these families’ needs can get overlooked. Schools, service agencies and policymakers may not fully understand just how intensive and permanent that support must be.

Recognizing “profound autism” as its own diagnosis would help make those needs clear. Doing so would ensure that individuals with the highest needs are visible in research, funding decisions and program development.

A profound autism diagnosis is about making sure the most vulnerable individuals are not invisible.

Jessica Sassi
The New England Center for Children, Southborough, Mass.