What Happens When People with Autism Go Untreated?
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What Happens When Autism Goes Untreated?
Have you ever wondered if the challenges you or someone you love faces every day might be more than just quirks or a personality trait?
Maybe social situations feel more overwhelming than it seems for other people? Do everyday tasks drain your energy to the point you need to recharge for days after? Have your relationships never “clicked” the way they do for others?
If you’ve spent years feeling different without knowing why, it’s possible that untreated autism could be part of your story. Understanding what happens when autism goes undiagnosed and untreated is the first step toward finding answers, support, and a path forward.
If you’ve spent years feeling different without knowing why, it’s possible that untreated autism could be part of your story.
Have you ever wondered if the challenges you or someone you love faces every day might be more than just quirks or a personality trait?
Maybe social situations feel more overwhelming than it seems for other people? Do everyday tasks drain your energy to the point you need to recharge for days after? Have your relationships never “clicked” the way they do for others?
If you’ve spent years feeling different without knowing why, it’s possible that untreated autism could be part of your story. Understanding what happens when autism goes undiagnosed and untreated is the first step toward finding answers, support, and a path forward.
What Happens When Autism Goes Untreated?
Autism spectrum disorder (ASD) affects an estimated one in 31 children and one in 45 adults in the U.S., according to statistics. While autism awareness has grown in recent years, many people still face late detection or never receive a formal diagnosis.
This means countless people are living with untreated autism, often struggling in silence and pain.
The consequences of autism aren’t limited to childhood. They extend into adulthood, shaping mental health, physical health, relationships, and even life expectancy.
Understanding the effects of untreated autism is critical for individuals, families, and caregivers. Getting a diagnosis and treatment helps ensure that every person on the spectrum can reach their fullest potential and their healthiest life.
Related: 4 Challenges and 4 Strengths in High-Functioning Autism
How Does Untreated Autism Affect The Brain’s Function?
Research has shown that untreated autism isn’t simply about behavioral symptoms—it’s rooted in differences in brain function.
At Amen Clinics, over 30 years of brain SPECT imaging has shown that there is not just one brain issue found in adults and children with autism. Brain scans of over 1,000 autistic children and adults reveal brain patterns with areas of high activity, low activity, or both in some cases.
On SPECT scans, abnormal activity is often seen in the following brain regions:
- Cerebellum
- Anterior cingulate gyrus
- Amygdala
- Temporal lobes
- Frontal lobes
- Parietal lobes
Knowing a person’s brain pattern can lead to more effective treatment options.
Other research supports these findings. A 2021 study found atypical connectivity in the brain networks of autistic individuals, impacting communication between regions responsible for social interaction, sensory processing, and executive function.
Another 2024 study showed that early intervention helps strengthen neural pathways associated with learning and adaptation, while autism without treatment often leads to entrenched difficulties that become harder to address over time.
When autism is left untreated, challenges in processing emotions, communication, and attention regulation can spill over into your personal and professional life. For adults, this may translate into difficulties maintaining employment, managing relationships, or coping with everyday stressors.
All of these are areas where untreated autism has ripple effects on long-term success and quality of life.
Why Do Symptoms Worsen Without Proper Diagnosis Or Treatment?
Autism without treatment often results in worsening symptoms because individuals often lack strategies to navigate their environment effectively. Without understanding the underlying cause, behaviors such as sensory overload, social withdrawal, or repetitive routines may intensify as coping mechanisms.
Over time, these unmanaged symptoms can contribute to isolation, anxiety, and frustration, creating a cycle that makes daily life increasingly difficult. Early recognition and supportive therapies can break this cycle for the better. However, without intervention, the consequences of untreated autism tend to compound.
What Are The Physical And Mental Health Consequences Of Untreated Autism?
Mental Health Consequences
One of the most concerning risks of untreated autism is its impact on mental health. Autistic children and adults without a diagnosis or treatment plan are more vulnerable to co-occurring mental health conditions.
According to one study, 78 percent of children with autism spectrum disorder have at least one co-existing mental health conditions and nearly half of them have two or more such issues. In this study, the most common mental health disorders were:
- Behavioral issues/conduct problems: 60.8 percent
- Anxiety disorders: 39.5 percent
- Attention-deficit/hyperactivity disorder (ADHD)/attention deficit disorder (ADD): 48.4 percent
- Depression: 15.7 percent
Brain imaging with SPECT can reveal the presence of other brain-based problems so that a targeted autism treatment plan can be developed to address all the issues affecting you or your child.
When these co-occurring disorders also go untreated, it can have devastating effects on a person’s life. A 2023 meta-analysis in Molecular Autism revealed that adults with autism have significantly higher rates of suicide attempts (around 35 percent) and suicidal ideation (about 66 percent) compared to the general population.
Without proper support, the weight of masking symptoms, navigating misunderstandings, and struggling with unmet needs can erode emotional well-being.
Physical Health Consequences
The effects of untreated autism also extend into your physical health. Many autistic adults and kids can experience:
- Gastrointestinal issues
- Inflammatory skin issues
- Sleep disturbances
- Higher rates of obesity or metabolic conditions
When autism goes undiagnosed, these physical symptoms may be overlooked or misattributed, delaying proper medical care. Stress from unaddressed autism can also increase cortisol levels, contributing to long-term risks such as cardiovascular disease.
This highlights how untreated autism affects not just the mind but the entire body.
How Does Untreated Autism Impact Independence And Relationships?
Living with autism left untreated can greatly impact your independence and relationships. Without tailored support, you may find daily tasks overwhelming. Ask yourself if you’ve ever struggled with…
- Managing finances?
- Navigating transportation?
- Organizing schedules?
Socially, difficulties with communication and understanding social cues can often lead to strained friendships, romantic challenges, and workplace misunderstandings.
For caregivers, this uncertainty can evoke something called caregiver burnout. When autism isn’t recognized, families may not know how to support their loved one effectively, leading to frustration, exhaustion, and emotional strain.
Families benefit when the right diagnosis and interventions are put in place, not only for the autistic person but for the health of the entire support system.
Does Untreated Autism Affect Life Expectancy And If So, How?
Yes! Research shows a direct connection between untreated autism and reduced life expectancy. A landmark 2023 study found that autistic people without intellectual disability die an average of 16 years earlier than the general population, primarily due to mental health conditions and suicide.
Those with intellectual disability face even greater health disparities, with life expectancy shortened by up to 30 years.
In everyday terms, this means untreated autism increases risks tied to unmanaged stress, missed medical conditions, and unhealthy lifestyle habits. Lack of diagnosis can prevent children and adults with ASD from accessing therapies, accommodations, and medical care that extend both quality of life and longevity.
What Happens When Medical Issues Go Undetected In Autistic Individuals?
Another hidden risk of untreated ASD is that medical conditions often go unnoticed. Autistic people may have difficulty communicating pain, discomfort, or changes in health, leading to misdiagnoses or delayed treatment.
For example, research shows that epilepsy, which is more common in autistic populations, can be overlooked if behaviors are mistaken for psychological rather than neurological symptoms.
Similarly, sensory sensitivities may mask sleep apnea, hearing issues, or dental pain. Without a diagnosis, the overlap between autism and medical problems can create serious gaps in healthcare.
Why Is Early, Even Late, Intervention Still Beneficial?
Whether at age three or 30, proper intervention matters. Both early and late intervention can improve outcomes by teaching coping strategies, strengthening brain function, and reducing long-term health risks. Benefits include:
- Improved communication, behavioral, and social skills
- Reduced anxiety and depression through tailored therapies
- Better school or workplace performance with accommodations
- Stronger family relationships through caregiver education
- Increased independence in managing daily tasks
Even if autism has gone untreated for years, receiving a diagnosis and beginning supportive care can make life more manageable and fulfilling.
How Can Tailored Treatments Mitigate The Risks Of Untreated Autism?
There is no one-size-fits-all treatment for autism. Each child and adult is unique and requires a personalized treatment plan to help mitigate the long-term effects of untreated autism. Autism treatment may include:
- Psychological therapies
- Behavioral therapies
- Developmental approaches
- Social-relational treatments
- Nutritional recommendations
- Targeted supplements
- Lifestyle support
- Educational support
- Mindfulness and relaxation strategies
- Medications (when necessary)